Narcolepsy Information

Here you can find a list of different articles and research papers on different aspects of narcolepsy and related material.

These links are from a range of different sources, some are research papers while others are personal accounts or publication articles.

Links that I thought pertained to more than one category have been listed in both categories to make it easier to find the information you are looking for, but this does mean that some articles appear twice.

If you know of any other links that I haven’t included here, please let me know and I will add them to the list 🙂

Start Here

Centre for Narcolepsy @ Stanford School of Medicine
A really great resource with lots of scientific info about narcolepsy including the latest research, as well as other things like a medication guide, FAQs, and even a  list of narcolepsy/cataplexy references in movies.

General Narcolepsy

Genetics home reference: Narcolepsy

Narcolepsy in the older adult

The brain and narcolepsy

Science Specifics

CD8 T cell-mediated killing of orexinergic neurons induces a narcolepsy-like phenotype in mice
(one step towards understanding autoimmune mechanics of narcolepsy) – 2016

Narcolepsy study finds surprising increase in neurons that produce histamine – 2013

Progressive Loss of the Orexin Neurons Reveals Dual Effects on Wakefulness – 2016

Study confirms narcolepsy as an autoimmune disease (now withdrawn) – 2013

The Role of Cerebrospinal Fluid Hypocretin Measurement in the Diagnosis of Narcolepsy and Other Hypersomnias – 2002

Diagnosis & Treatment

AWAKEN survey finds physicians mostly in the dark when diagnosing narcolepsy – 2012

Baclofen for narcolepsy with cataplexy: two cases – 2015

Delayed diagnosis, range of severity, and multiple sleep comorbidities – 2013

Diagnoses received by narcolepsy patients in the year prior to diagnosis by a sleep specialist – 2002

Effect of age on MSLT results in patients with narcolepsy-cataplexy – 2004

Factors associated with duration before receiving definitive diagnosis of narcolepsy among Japanese patients – 2014

Multiple sleep latency measures in narcolepsy and behaviourally induced insufficient sleep syndrome  – 2009

Novel therapeutic opportunity in narcolepsy

Safety profile of modafinil across a range of prescribing indications

Sleep researchers at SRI International identify promising new treatment for narcolepsy

The impact of gender on timeliness of narcolepsy diagnosis – 2014

Unmet needs of patients with narcolepsy: perspectives on emerging treatment options – 2015

Sleep paralysis

Situational factors affecting sleep paralysis and associated hallucinations: position and timing effects.

Naps

Five scientific secrets to naps that will make you happier and smarter

Wake Up to the Benefits of Power Napping – Boost Clarity, Happiness and Cardiovascular Health

Dreams

Delusional confusion of dreaming and reality in narcolepsy

Dream-disturbed sleep in insomnia and narcolepsy – 1993

Increased Lucid Dreaming Frequency in Narcolepsy

Lucid dreamers produce the fastest brainwave frequencies ever recorded

Science of Sleep: Dreaming, Depression, and How REM Sleep Regulates Negative Emotions

Semantic priming effect during REM-sleep inertia in patients with narcolepsy – 2006

Story-like organization of REM-dreams in patients with narcolepsy-cataplexy – 2008

REM-dreams recall in patients with narcolepsy-cataplexy – 2010

Mental impacts

Decision making and addictive behaviours in people with narcolepsy

Delusional confusion of dreaming and reality in narcolepsy

From sleep study, clues to happiness

Metamemory in narcolepsy (PDF)

People with narcolepsy process humor differently – 2019

Science of Sleep: Dreaming, Depression, and How REM Sleep Regulates Negative Emotions

When treating narcolepsy isn’t enough (psychiatric comorbities) – 2019

Other physical impacts

Eating Disorder and Metabolism in Narcoleptic Patients – 2007

Increased mortality in narcolepsy – 2014

Researchers find sleep gene linked to heart failure

Why narcoleptics get fat

Lifestyle and social impacts

AWAKEN survey finds physicians mostly in the dark when diagnosing narcolepsy

BOND study explores cost, science of sleep disorder

Elara Blair (Carrie-Ann Burns) on Narcolepsy

Financial Impact of Narcolepsy Diagnoses Go Beyond Individuals

Health-Related Stigma as a Determinant of Functioning in Young Adults with Narcolepsy – 2015

Smoking Prevalence and Its Clinical Correlations in Patients with Narcolepsy-cataplexy – 2016

Relationships

A little sister’s perspective on narcolepsy and cataplexy

Sleeping through companionship – Dating a person with narcolepsy

Supporting people with narcolepsy – What friends and family should know

Pregnancy

Conception, Pregnancy, Delivery, and Breastfeeding in a Narcoleptic Patient with Cataplexy

Health Canada Warns that Modafinil May Cause Fetal Harm – 2020

Management of narcolepsy during pregnancy

Modafinil and the Risk of Congenital Anomalies – 2019

Narcolepsy and pregnancy

Treatment of Narcolepsy with Sodium Oxybate While Breastfeeding: A Case Report – 2016

Children with Narcolepsy

Attention-Deficit/Hyperactivity Disorder (ADHD) Symptoms in Pediatric Narcolepsy – 2015

Clinical features of childhood narcolepsy. Can cataplexy be foretold? – 2011

Depressive feelings in children with narcolepsy – 2014

Growing Up With Type 1 Narcolepsy: Its Anthropometric and Endocrine Features – 2016

High bicarbonate levels in narcoleptic children – 2016

High prevalence of precocious puberty and obesity in childhood narcolepsy with cataplexy – 2013

Impact of obesity in children with narcolepsy – 2013

Psychosocial Profile and Quality of Life in Children With Type 1 Narcolepsy: A Case-Control Study – 2016

Sodium oxybate in the treatment of childhood narcolepsy-cataplexy – 2012

Quality of life in children with narcolepsy – 2014

General sleep

What Actually Happens While You Sleep and How It Affects Your Every Waking Moment