My Advocacy
Narcolepsy 360: Elle Wales (ep. 17)
24 May 2019 – Wake Up Narcolepsy
I’m so excited to share this podcast I did with Narcolepsy360 from Wake Up Narcolepsy Some of you probably know that as much as I overshare online I’m pretty introverted IRL and much prefer typing my words to speaking them, but I also like to challenge myself… especially when it means another opportunity to show different sides of narcolepsy and spread awareness. Chatting to Claire was a great experience and I feel like I got a few good points in between the rambling!
I’m Not Lazy
21 September 2017 – Take 5 Magazine
It was great to be contacted by Take 5 magazine to share my story of getting diagnosed with narcolepsy and later gaining access to Xyrem. This story is pretty brief, but I’m happy that it gets the facts correct (even though some of the detail is lost!)
What I Wish People Knew About Narcolepsy
26 July 2017 – Man Repeller
I was absolutely thrilled to be invited to speak to Harling from Man Repeller about life with narcolepsy and my quest to educate people about what that really entails. I’m so proud of this article. I think it paints a really clear picture of how having narcolepsy teeters between living a “normal life” and struggling to cope (and explain this to others) in a way that I don’t think is usually openly discussed.
Narcolepsy sufferers offered hope with treatment related to date rape drug
2 July 2017 – News.com.au
This was my first interview with a major media outlet. I was pretty disappointed with the sensationalised title, but otherwise I thought the story came out pretty well. It was really great to be given this opportunity to raise awareness of narcolepsy, and more specifically the issues surrounding access to Xyrem in Australia.
SleepTalker: Fall Asleep Right Now
25 September 2016 – SleepTalker
It was great to speak to the lovely Bec Fary about living with narcolepsy, my crazy narcoleptic dreams and one scary real life experience that still haunts me to this day! I love the storytelling focus of this podcast and the sound design really enhances it.
Television
Julie Flygare on The Doctors
9 February 2015 – The Doctors
Julie Flygare on The Daily Edition
25 November 2014 – The Daily Edition
Woman’s narcolepsy video goes viral
21 November 2014 – TODAY
Honda Narcolepsy PSA featuring Julie Flygare
1 November 2014 – Project Sleep
Other Video
The price of living with a rare condition
20 June 2017 – ABC News (Australia)
You should also check out the web version of Aaron’s story. It’s an interesting way of conveying the facts using a combination of images, words and video.
Honor’s Story
29 June 2016 – Animation by designer Melissa Keen
Julie Flygare at Med X 2015
24 September 2015 – Presented at Stanford Med X at Stanford University
Cataplexy (acapella song & animation)
19 August 2015
Podcasts
Sawbones: Narcolepsy
23 June 2016 – Sawbones
Just Talking Podcast: with Julie Flygare
8 December 2015 – Just Talking
The History of Narcolepsy Part 1, Part 2
9 February 2015 – Stuff You Missed In History Class
A day in the life of a narcoleptic
5 February 2015 – The Pulse, WHYY
The Science Times Podcast
This week: The battle of the Outer Banks; a cry in the dark; and falling asleep too easily.
5 March 2012 – The New York Times
Articles
Ashley’s Story (Narcolepsy)
March 18, 2019 – Fight Like A Girl
A feature, not a bug’: George Church ascribes his visionary ideas to narcolepsy
8 June 2017 – STAT
What It’s Like to Have Narcolepsy and Go Through Life Tired AF
25 March 2017 – Vice
What It’s Like to Abruptly Pass Out Every Time You Laugh
9 April 2016 – Broadly
OptiNose® Announces Pipeline Project to Evaluate Nose-to-Brain Application of Bi-Directional™ Breath Powered® Technology Selected for Norwegian Government Funding
1 February 2016 – Optinose
Talking with a Man Who Takes Nine Grams of GHB Every Night to Treat His Narcolepsy
17 December 2015 – VICE
I have narcolepsy, and I hate that people think I’m just lazy
29 May 2015 – Vox
How Narcolepsy Drove Harriet Tubman to Free Slaves
29 May 2016 – Modern Notion
Some days I fall to the ground paralysed without warning
20 April 2015 – Daily Life
True Story: I Have Narcolepsy
23 March 2015 – Yes and Yes
Portraits of narcolepsy in New York City
29 April 2014 – The Atlantic
My battle with narcolepsy
That’s Life Magazine
Narcolepsy: What we all should know
8 July 2012 – The Huffington Post
UK health officials probe possible flu jab link to narcolepsy in children
29 March 2012 – The Guardian
Too often, doctors overlook narcolepsy
5 March 2012 – The New York Times
The hard science behind nodding off: sleep disorder
2 January 2011 – The Australian
A leap forward, but hurdles remain in narcolepsy
19 February 2008 – The New York Times
Narcolepsy
7 September 2000 – ABC Science